Tuesday, November 4, 2014

Another Hiccup

One can only hope that this is all it is. Not sure my heart can handle it being anything other than another small bump in the road.

On Friday, at the very end of the day (typical of CCRM) I received an email with the final results of Kelly's blood work. I had thought this was all in, but apparently not. Or apparently they were waiting until I was really excited to throw us a curve ball. Either way, the email came in at 5:30 pm on a Friday and I had to wait until Monday to get any answers. Which in my opinion, is kind of cruel and unusual punishment.

Her antibody screen came back "inconclusive". Meaning, there were possible small amounts of antibody detected, but couldn't be identified. A few people have asked me what IS an antibody screening. Here's what the nurse said:

Antibody screening is a test to detect atypical antibodies in the blood that may have been formed as a result of a transfusion or pregnancy.  Patients who are attempting pregnancy have their blood typed and screened to diagnose and prevent hemolytic disease of the newborn (HDN), a type of anemia also known as erythroblastosis fetalis.  If antibodies are present, she cannot move forward as a GC due to the risk of complications with the baby.  There is no treatment.

So yes, my brain is spinning and my heart is on high alert. They want her to retest next week, which is exactly 4 weeks from her last test. The good news is, they are still allowing her to start birth control pills in preparation for transfer regardless. Dr. G thinks that "most likely" it was a reaction to some protein in her blood and will come back negative on the next evaluation.

She was last screened for this during her most recent (two) pregnancies. Both were negative.

Let us all hope this next test is negative as well.

This I know. I will fight for her. I don't know if this is something that all clinics are so black and white on when it comes to accepting a GC. It's not a test I remember ever having in all of my fertility screening. So why her? I get the risks, but is this not something that can be controlled? Watched? Is this something that CCRM is way more critical of vs. other clinics? I know that on somethings they can be.

If I have to move my embryos. I would do it. I hope it never comes to that. I hope that this is just me frantically worrying about the "worst case".

If any of you can shed more light, comfort or even concern on any of this...I am all ears. Please...give me something that can get me through the next week. (For anyone looking at it from the D (Rh) type aspect...she is Rh positive.)

xoxo
Suz (with bottle of wine in hand)

20 comments:

  1. Ughhhhh! The Rh thing was the only think that came to mind as I remember being tested for that during my first miscarriage, but it doesn't sound like that's what they are talking about, right? Because there IS a treatment for that. If K is negative and the baby ended up being positive, she's need the injections, but I don't think that eliminates pregnancy, right? I was positive, so I never looked into too far. Hoping someone else has more insight!

    Really hoping the results can come back soon and that they are conclusively negative!

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  2. Oh my! I don't know about you, but my heart can't take any of these hiccups! LOL! Praying for you sugars! I know that God has a special plan and nothing will stop Him from giving you the desires of your heart. xo

    waitingforbabybird.com

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  3. Hi Suzanne, I haven't commented before but have been following your blog for awhile through Amanda's blog.

    I don't know how relevant this is, but I have a good friend who is dealing with RPL and she tested positive for anitbodies over the summer. She was very upset of course and we said lots of prayers. A retest 6 weeks later came back negative, so she does NOT have antibodies after all. This is not a GC situation so like I said, it may not be exactly relevant, but it does show that false positives for antibodies do happen. Thought I would share in case it offers a little hope. Praying that everything will be able to move forward for you.

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    1. Hi Annie! Thank you so much for commenting. It's nice to know that regardless of the different circumstances it is very possible for that test to come back negative. Hoping since her first test was just "inconclusive" that there was just a lab error. Thank you again for the prayers and well wishes!

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    2. Yay! Annie is the best! Hoping that her friend's scenario proves true for K as well... no antibodies!

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  4. Oh girl! This will all work out. I just know it. It has to. You deserve this. I hope you have a bottle of wine in BOTH hands!

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  5. I will be sending so many prayers and hopes that the next test will come back fine. Hopfully CCRM doesn't wait too long to tell you!!

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  6. So sorry for the hiccup! I hate that just when you were feeling good about things, this happened but I hope and pray that it was just an error and everything will be fine next week! The whole situation with K just seems too perfect and too ordained for it to all fall apart now. Lots of prayers for you ( and K!) as you await the results!

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  7. We say NO to antibodies!!! Praying the next test comes back clear and you can all move forward!!!!!!!!1

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  8. Oh Suzanne I hope this is not a big deal. Praying that her blood work results come back fine the next time.

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  9. Gah! A little smoothness is called for! CCRM should be more humane about when they relay info----they've got to know it's torture to wait and wonder. xo!!

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  10. Praying there was just an issue with the test and the next one turns out just fine!

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  11. Oh Suzanne. I'm so sorry to hear this. Hoping and praying that her next test comes back negative and you can continue to move forward. I'm thinking of you as you go through yet another wait. Sending you love.

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  12. Prays that eveything goes better with the next test. I only rember having this screening at CCRM, but not at my local clinic for treatments.
    As always, thinking of you!!! XO

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  13. I've never heard of this but it sounds so stressful. Just reading the title of your post, my heart sank for you. You DO NOT EVEN KNOW how much I want this to work for you. You are right there at the top of my prayer list when it comes to babies, Suz. I'm not moving you from that spot til you have that baby in your arms.

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  14. Oh no. Poor you. I hope the next test comes back fine, and that the only other hiccup we hear about will be the ones of your baby (because they seem to do that a lot ;)

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  15. I've never heard of this testing for GC's, but I'm hoping next test comes back negative. If not, I think moving your embryos is not that big of a deal honestly. You've got a fantastic clinic in Chicago that has crazy good FET rates. I wouldn't blink my eyes twice to have a transfer done there. Hold tight sister. No sense in even worrying about all of that until the next result. Hoping it's smooth sailing and no need for a detour!

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  16. I have followed your blog on/off for a while but haven't recently read many of my IF/IVF blogs - so it was quite random I looked at yours today. So I hope you will excuse me for commenting for the first time. I have done so because as an Anaesthetist (from Australia) I can maybe help you understand what they are talking about. Keep in mind I do not have all the information and I am assuming things only from the information you have given me but I do hope it may help you survive the next week and/or make plans for the future.
    The only problem is that my explanation is too long to fit here. So I have sent you an email - look out for it in your inbox its called "antibodies"
    Warmest wishes and hopes for you.

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  17. I know I'm really behind on commenting on the blogs, although I've been keeping up. I'm so sorry about this last minute curveball. I really hope it's all okay and she can proceed with the transfer on 12/16. You have been through so much already, I want the rest to just go the way it needs to. *hugs*

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  18. just blogwalking.. Nice post and have a nice day :)

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